tag:blogger.com,1999:blog-31176359.post1294839974186661903..comments2023-10-29T02:06:52.260-06:00Comments on Doc of Ages: ESBL E. colidenverdochttp://www.blogger.com/profile/09574453567392165275noreply@blogger.comBlogger54125tag:blogger.com,1999:blog-31176359.post-51459002644923771372016-11-22T14:08:14.483-07:002016-11-22T14:08:14.483-07:00Hi,
I just got to know that i'm colonized wi...Hi,<br /><br />I just got to know that i'm colonized with ESBL after a trip to Spain. It means that this bacteria is living in my gut.<br /><br />I'm really worried as i'm already having UTI very often. <br />I would like to know if this colonization can disappear with time or not? Can our body get rid of it?<br />Anybody of you got rid of it after few months or few years?<br /><br /><br /><br /><br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-31176359.post-9413052406141196432016-10-20T19:11:09.582-06:002016-10-20T19:11:09.582-06:00First of all I'm sorry for your loss. Can you ...First of all I'm sorry for your loss. Can you please talk about the results? I'm having similar issues as him.Zhttps://www.blogger.com/profile/07083502373039526157noreply@blogger.comtag:blogger.com,1999:blog-31176359.post-56256625910482345972016-10-17T18:06:30.227-06:002016-10-17T18:06:30.227-06:00Dee here again. 10/17/2016.
The 2nd round of Macro...Dee here again. 10/17/2016.<br />The 2nd round of Macrobid seemed to have "cured" the ESBL, but as I mentioned last time, some lessor burning continued until I stopped using the incontinence pads I had started using because of all the coughing and being 60.<br />So now the symptoms are all gone, but I gots some UTI strips and specimen cups to monitor regularly just in case. Thought it was a good idea. I am also taking "FemDophilus" and "D-Monnose" as preventive tools.<br />Hi Luz. Thanks for sharing your story..I sure hope your Mom is doing better and the the treatment works. Remember to take care of yourself too while caring for her!<br />Best to all!<br />-DeeAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-31176359.post-71845936600125149092016-10-17T11:56:24.695-06:002016-10-17T11:56:24.695-06:00My 87 year old mother has fought off UTI's for...My 87 year old mother has fought off UTI's for the past seven years since a stroke. She was just diagnosed with ESBL (and EColi)infections after a day of being treated with the wrong antibiotic. Her blood pressure has risen to 170/110, but hopefully he treatment will resole the infection.Luz Noviohttps://www.blogger.com/profile/16413902499363422650noreply@blogger.comtag:blogger.com,1999:blog-31176359.post-8732552392515682442016-09-18T22:34:34.289-06:002016-09-18T22:34:34.289-06:00I was diagnosed 2 years ago with an esbl uti. For ...I was diagnosed 2 years ago with an esbl uti. For the first time since then I now have another uti. Flank pain and low grade fever. When I was initially diagnosed I went through hell to get help. I was on MANY different antibiotics before they put an IV in me. I ended up with a piccline and Invanz "cured" it. I should find out tomorrow from the culture if it is esbl again. It's such a struggle to find information on the Internet and my doctors don't seem to know much more than me. How many of you have reoccuring esbl utis? I've been on Macrobid the last three days, but my symptoms seem to be getting worse. Praying I don't have to get a piccline again, since I can't work at my nursing home with it. 27 years old here and I'm really worried I'm gonna have to battle this on and off forever. Anonymoushttps://www.blogger.com/profile/17141112243725663612noreply@blogger.comtag:blogger.com,1999:blog-31176359.post-28236082962208099212016-08-04T19:51:08.889-06:002016-08-04T19:51:08.889-06:00This is Dee again with an update. But first I wan...This is Dee again with an update. But first I want to thank DenverDoc for putting this blog and post up. And to everyone who has posted. I know it went up in 2009 and it's now 2016. I can't tell when the last post before me was made, but given the small amount of info available and how much it helps to find experiences people have had, I want to leave my own.<br />So the 2nd culture came back positive also, but on the good side it still shows that it's sensitive to the Macrobid. So I started a 2nd regimen this morning. This time for 7 days. Right now I still have symptoms but took some Azo to quell them. Will let you all know what happens. I'm going to share your post, femail DenverDoc, so you may see some more traffic here. Thanks again! -Dee 8/4/2016Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-31176359.post-13662573846688092662016-08-03T19:06:09.741-06:002016-08-03T19:06:09.741-06:00Hello all. I was so glad to finally find a discuss...Hello all. I was so glad to finally find a discussion about ESBL that involved patients. It's very difficult to find info outside of research and studies. My story:<br />I was dealing with an Upper Respiratory infection that I thought was a cold when the UTI symptoms began. Doc put me on Cefpodoxime, 100mg, which she said would treat both. Three days later she called with the bad news that I needed a different antibiotic for the UTI without specifics about the infection. I took a regimen of Macrobid, 100mg BID for 5 days, which proved ineffective at relieving symptoms.<br />It was when I went online to their portal to email her that I saw the ESBL diagnosis and started searching, finding only dreadful information. I'm now on no antibiotics and waiting for results from a second specimen, hopefully I'll hear tomorrow. In the meantime I take Azo to ease the pain when I absolutely have to and started a mega-C & D, Cranberry, Probiotics, and Apple Cider Vinegar regimen.<br />I'm hoping that treatment has improved since some of your stories and I pray you are all well. I'm a 60y/o woman feeling pretty anxious right now and looking for an ID specialist on my plan. A nurse friend suggested looking for a "Uro OB" which I've never heard of and haven't found many of. Doctor says if I have to have daily treatments, there are some ambulatory possibilities as opposed to in-patient IV. I'm wondering if they do that sort of thing at Urgent Care Clinics or if it has to be an ID office. Looking forward to finding out next steps. I don't want this to end up in my bloodstream and evolve to sepsis.<br />So glad to have found you all. Thanks! -DeeAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-31176359.post-13572285948345279042016-08-03T12:48:33.162-06:002016-08-03T12:48:33.162-06:00This comment has been removed by the author.weberdleehttps://www.blogger.com/profile/06793635429755945988noreply@blogger.comtag:blogger.com,1999:blog-31176359.post-19500319714658249112016-05-30T14:41:05.525-06:002016-05-30T14:41:05.525-06:00The doctors say esbl/ecoli is living in my urinary...The doctors say esbl/ecoli is living in my urinary tract. Some place between my bladder and vagina. They also say there is nothing that can be done. Anonymoushttps://www.blogger.com/profile/00996374290882170704noreply@blogger.comtag:blogger.com,1999:blog-31176359.post-11445538956123172502016-05-12T08:12:10.882-06:002016-05-12T08:12:10.882-06:00I have been diagnosed with esbl E. coli since retu...I have been diagnosed with esbl E. coli since returning from a trip to Haiti. I have been on a round of Macrobid and it returned after about a week. My urologist then prescribed Amikacin shots for 3 consecutive days, about two weeks ago, which helped, but I feel like it is back today. I am very healthy otherwise, take lots of vitamins and do weight lifting and high intensity aerobic exercise almost every day. i am going to get a urine culture to see if it is back, but in the meantime, I am wondering if this can be sexually transmitted and if I should have my husband tested too so that I am not re-infected if I ever get rid of it. We both work in health care.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-31176359.post-17268321627994191382016-04-10T16:26:14.233-06:002016-04-10T16:26:14.233-06:00Hi Sarah,
I am unclear what you mean by colonize...Hi Sarah, <br /><br />I am unclear what you mean by colonized e coli. When you straight cath and get a 'clean urine', that means the sample taken directly from your bladder without passing the external genitalia is free of bacteria. All of us have e coli on our external genitalia as this is a common bacteria in the colon. It is not unusual for older women (I wouldn't consider age 38 as older!) to have bacteria in their bladder, often without symptoms of an infection (pain on urination, urinary frequency, etc). Diabetics are prone to urinary infections. Please clarify your concerns, namely what it means to you to be colonized with e coli, and what your physician has told you about your condition.<br /><br />You certainly have a lot of health problems to deal with; I'm sorry that feeling sad and dirty complicate things even more.<br /><br />Best wishes,<br />Judy Paleydenverdochttps://www.blogger.com/profile/09574453567392165275noreply@blogger.comtag:blogger.com,1999:blog-31176359.post-19121644757207192502016-04-05T17:42:28.181-06:002016-04-05T17:42:28.181-06:00Is there any way to get colanized ecoli out of me?...Is there any way to get colanized ecoli out of me? When I am straight cath that urine is clean, so it is not in my bladder. I feel dirty and Mac and sad. I did nothing to have this. Wil it ever go away? <br />I am 38 almost. Have been diabetic for 28 years acetal UTI all my life. I am also almost blind but not related to the diabetes. Anonymoushttps://www.blogger.com/profile/00996374290882170704noreply@blogger.comtag:blogger.com,1999:blog-31176359.post-73010318782229370212016-03-30T06:00:11.511-06:002016-03-30T06:00:11.511-06:00Anyone know of a way to get colanized ecoli out of...Anyone know of a way to get colanized ecoli out of my urinary tract? When they cath me and get urine from my bladder it is clean. But there is always esbl ecoli in my urine In a cup. I don't have any pain or burning. I feel "dirty". I want this out of MY body. Anonymoushttps://www.blogger.com/profile/00996374290882170704noreply@blogger.comtag:blogger.com,1999:blog-31176359.post-9685435018023898082016-01-04T14:34:12.724-07:002016-01-04T14:34:12.724-07:00Hi I was recently hospitalized with esbl infection...Hi I was recently hospitalized with esbl infection in my kidney. It has been a long recovery. I had a esbl infection uti 3 years prior to this recent infection. Is it possible this was caused from my first encounter with esbl or could it be two isolated incidents of contracting esbl. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-31176359.post-9364435050139676602015-07-28T17:52:36.102-06:002015-07-28T17:52:36.102-06:00Mary says:
I am a longtime nurse and just got this...Mary says:<br />I am a longtime nurse and just got this nasty bug myself - totally out of the blue. Two days before I went to the ER, I told my chiropractor with my monthly appointment that I had a bad flare up of arthritis without any reason I could come up with - now I know where that came from.<br />I had a low grade fever for 2 days, just not feeling quite myself in the afternoons, but the 3rd day the temperature got higher and I knew I was sick. The next morning (Sat) I went to the ER and was diagnosed with a UTI as I suspected. I started on Cipro, but after 3 days I was sicker than ever in my life and my daughter had to take me back to the ER ( too weak this time to try and drive there myself). I was rehydrated in the ER, as I had been so nauseous that I just could not get anything into my body. The next morning I had to go back to the doctor and there he showed me I had this nasty, nasty superbug that I have not even heard of before. I am now almost through with 10 days of IV Ertapenem treatment and am basically back to normal, except for a huge lack of my usual energy. What I now really want to know I if it is possible to get rid of this thing in one's colon. I am preparing to retire soon and all of a sudden I think my life expectancy just dropped with a whole lot of years. I had a Pyelo-nephritis this time. How many more infections before I get it in a vital organ or in the blood?<br />The irony is that I am also a good student and follower of the natural health movement and even have some qualifications in nutrition etc. I have been focusing on prevention and building a healthy immune system, so this feels like a double hard blow for me. <br />My plan is to go forth with detoxifying, building a healthy body. I may also try some new products which promote stem cell growth. Will report back after a while.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-31176359.post-74824775857641567162015-07-27T16:46:02.135-06:002015-07-27T16:46:02.135-06:00Wow, hospitalized three times and living in an iso...Wow, hospitalized three times and living in an isolation room for almost 4 months, what a difficult road your dear mom is traveling. <br /><br />I had a similar experience with my mom. Old, frail, and more or less bedbound pretty much define a person in very poor shape to fight off any infection, especially such a virulent and resistant one as ESBL. I too called in Hospice to help realizing that this did not mean she had to die but that she and I needed help to get her through those final months in style. <br /><br />I assume your doctors have given your mom the best chance possible to overcome this, and I hope you and she (if she's still aware enough of the bigger picture) can find peace in that which you are doing. It's incredibly hard to feel comfortable making such decisions for another person who is no longer able to voice her needs, but you are standing by your mom in a wonderful way, and this knowledge will help you now and in the future.<br /><br />I know you were hoping I'd have some ESBL specific suggestions, but having been there, done that, all I can offer is thoughts and prayers as you make hard but good decisions.denverdochttps://www.blogger.com/profile/09574453567392165275noreply@blogger.comtag:blogger.com,1999:blog-31176359.post-19843702738014102902015-07-27T08:28:40.590-06:002015-07-27T08:28:40.590-06:00So sorry about your Mom. I'll write more later...So sorry about your Mom. I'll write more later. denverdochttps://www.blogger.com/profile/09574453567392165275noreply@blogger.comtag:blogger.com,1999:blog-31176359.post-46471083605827700192015-07-26T15:48:43.641-06:002015-07-26T15:48:43.641-06:00I'm not sure if this thread is still relevant,...I'm not sure if this thread is still relevant, but my 82 year old Mother, was diagnosed with ESBL in April. Has been hospitalized 3 times since for over a week. And as she lived in a Nursing home, she was in an isolation room for the better part of the last 4 months. She got out of the hospital last Monday, has come to my home to live, but now we have Hospice helping to care fore her. Because I've been told that there's nothing more that can be done. They've hit it with the strongest antibiotics there are, and it keeps coming back. She also has Alzeimers and the ESBL is causing its effects to escalate. I cannot believe that there are no other options to getting rid of this! I'm not ready to lose my Mom, and I keep second guessing myself if this is the right decision or not, to not at least try. I had never heard of ESBL before she got it, and I pray we never have to deal with it again.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-31176359.post-15268781212346601552015-01-18T16:00:30.991-07:002015-01-18T16:00:30.991-07:00Thank you SO much for your reply...probiotics is d...Thank you SO much for your reply...probiotics is definitely one of my "go-to" - but along with the "cranberry juice", and other remedies - there's not definitive evidence that it eradicates this "bad actor". However, it can't HURT. So between D-Mannose to flush things out, and probiotics - I'm hoping I can battle this thing. But I do have to say one thing - my bladder HURTS! It's just not normal for this organ to go through multiple infections... it hurts less so - the further out from the last infection bout - but the poor thing is in "shock"! Anyway - thank you so much for your concern - and for just plain reaching out. There is NO other support group or place to vent - on this, because I think it's just so new...to the U.S. anyway - I'll chime in again if I find anything else ....best, PaulettePaulette Olivahttps://www.blogger.com/profile/16536949171928310566noreply@blogger.comtag:blogger.com,1999:blog-31176359.post-39167556367226053072015-01-08T09:49:36.510-07:002015-01-08T09:49:36.510-07:00Hi Paulette,
I'm sorry you're having such...Hi Paulette, <br />I'm sorry you're having such a time of it with this bad actor e coli. I am, however, glad you took the time to comment as you have sent me on a search at pubmed.gov which was most instructive. <br /><br />I looked up colonization and ESBL, and came across several articles about the risk of colonization with travel. The studies focused on European travelers to southeast Asia and India. Of interest in your case is that pre-travel colonization rates of ESBL e coli present in these German and Swiss subjects ranged between 3-6%, so your theory that you picked up the bug in Europe is possible. There is also date on hospitalized patients in the US showing that almost 3% of those admitted to the hospital became positive for ESBL e coli or klebsiella bacteria. <br /><br />Back to the travelers, well over half of them acquired ESBL e coli during their trip, and the highest rate were those returning from India, nearly 87%! Clearly, ESBL species are a worldwide problem, and worldwide travel brings the problem home to all localities.<br /><br />Your troubles are doubtless due to colonization. There are multiple articles about the effects of probiotics on normalizing the bacterial populations in the human colon. I couldn't find much on pubmed.gov, but there is a lot of information found with a google seaarch on probiotics and ESBL that you might want to check out. I will do the same this weekend.<br /><br />I hope that you will be able to put all this e coli angst behind you soon!denverdochttps://www.blogger.com/profile/09574453567392165275noreply@blogger.comtag:blogger.com,1999:blog-31176359.post-1289165275291759392015-01-06T20:25:50.232-07:002015-01-06T20:25:50.232-07:00Hi - I'm trying to beat chronic occurrences of...Hi - I'm trying to beat chronic occurrences of an ESBL - E.Coli UTI. Hospitalized last year when it elevated to a kidney infection. Started me on "typical" antibiotics for UTI - and as you stated earlier - it just destroyed the lactam chemical ring, and I got progressively worse. Had a "Burch" procedure to correct my bladder - (stress incontinence) but after 10 infections over the past year, a PICC line, and a reaction to Macrobid, my only alternative is IV - Ivantz/ertapenum. My question is - can I do anything to try and get to the underlying cause of being infected? Am I colonized AND infected? Help! My doctor is great - but I want to go deeper into the causal factors. I traveled to Italy for 5 years - and it's more prevalent over in Europe. She thought I might have picked it up there. Any info would be appreciated! These super-bugs are NOT to be trifled with! They are BAD!Paulette Olivahttps://www.blogger.com/profile/16536949171928310566noreply@blogger.comtag:blogger.com,1999:blog-31176359.post-61847407894604910022014-05-19T20:03:57.649-06:002014-05-19T20:03:57.649-06:00Sandi- a few weeks ago I was not well. Spent 2 nig...Sandi- a few weeks ago I was not well. Spent 2 night in the hospital and was sent home with IV still in arm. On morning 2 of IV meds they took out the IV and told me I had Esbl. And sent me on my way. Just this past week I was back to the hospital. I have a GP that is so new she has never heard of Esbl. I am starting to wonder if I am being treated right. <br />I live in a very rural area and I don't think the local hospital, really a walk in clinic with 4 beds, I don't think they know how to treat it. I have a feeling with the way I feel now it has not cleared and I most likely need to go to a larger, real hospital and get proper treatment. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-31176359.post-58797130871308428262014-03-25T02:51:38.419-06:002014-03-25T02:51:38.419-06:00I got ESBL e.coli also from India trip. Luckily th...I got ESBL e.coli also from India trip. Luckily they checked me in my local hospital for all possible bugs after being hospitalized during my travel. I haven't had any UTI but I had serious infection in my abdomen 2 years ago - docs thought I had diverticulitis but since my CRP was over 100 and I had ESBL they gave me Meropenem IV for about a week. I haven't had any serious stuff since then - lucky me.<br />To prevent problems with my bowels etc. I try to eat fiber and drink a lot and once in a while I buy unsweetened cranberry juice. It should be taken 1 glass in the morning minimum during UTI. Best would be to take it morning and evening.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-31176359.post-86800602309359884662013-09-06T10:01:05.299-06:002013-09-06T10:01:05.299-06:00Kissing is not a problem. It's good for your s...Kissing is not a problem. It's good for your spirits which is good for your immune function!denverdochttps://www.blogger.com/profile/09574453567392165275noreply@blogger.comtag:blogger.com,1999:blog-31176359.post-9206235526189127062013-09-06T09:54:53.874-06:002013-09-06T09:54:53.874-06:00There is no point culturing urine right after you ...There is no point culturing urine right after you finish a course of antibiotics. Nothing would grow even if the UA is not clear. Sorry you're having recurrent symptoms. Your urine needs rechecking. denverdochttps://www.blogger.com/profile/09574453567392165275noreply@blogger.com